Kate Davies Shane Jeffery Phillip Butterfield - until our abseil at Berry Head, 80ft to raise money for The MPS Society and awareness of MPS diseases. Sponsor us at www.justgiving.com/mpsabseil
Anaesthetics have become a bit of a norm for us over the last 6 years. Corey was only 4 months old when he had his first 'general' to correct a hernia (another symptom of MPS). He has now had 25 general anaesthetics.
All but 1 of these has been at Bristol Children's Hospital due to him being high risk and requiring an anaesthetist with MPS knowledge.
MPS makes him high risk due to his cervical spine instability, short neck, narrowed airways, thick tongue and limited jaw / neck movement. He has only recently started to use a gas induction instead of a needle.
Before an anaesthetic Corey can't eat solid food for 6 hours or drink any water for 2 hours prior to admission.
He's absolutely brilliant at waiting and even walks down to theatre and climbs onto the bed, this week he's also been very nosey asking what everything is and what everyone is doing! Knowledge is power!
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