MPS affects every part of a child's body. Before Corey was diagnosed some damage had already been done by the disease. His treatment only slows down the progression, it does not fix what was already affected or cure the disease.
MPS can cause thickened heart valves, leaky heart valves, thickened heart muscle and narrowed arteries. Sometimes heart valve replacement surgery is necessary.
Corey has an echocardiogram (ultrasound of the heart) every year by a cardiologist from Bristol who visits Torbay. This checks his heart and valves and monitors any changes. I'm extremely pleased to say that he has been stable with no leaks and his heart looks 'typical' for a child with MPS1! He is due to be seen in July this year.
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