We are abseiling 80ft at Berry Head in Brixham wearing blue to raise awareness and funds for The MPS Society.
Today, 6 years ago, we received Corey's confirmed diagnosis of MPS1 - Hurler Syndrome.
What I remember most about this day was sobbing. Once we got home from the hospital and researched online what MPS1 meant for our son and how to pronounce it, I literally grieved. After that there were the phone calls, emails and visiting family and friends to explain the diagnosis to them. I think from that moment on we knew that we had to be and stay strong for Corey to stand any chance of getting through the treatment and surviving.
6 years on and he's still here doing great!
Please donate at www.justgiving.com/mpsabseil or via text MPSA85 £1,£2,£3,£4,£5,£10 to 70070
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