Tuesday, July 12, 2016

Where's the summer?

As always I have been meaning to write sooner but 3 months is a good start!

Our MPS fundraiser went amazingly well.




We raised £2510 and 7 of us are 82 inches of hair lighter!



The morning was just fantastic, so many people came out to support us and I was completely overwhelmed that it was all about Corey!  He was in his element handing out stickers to everyone as they arrived and by our calculations there were over 250 people within the 2 hours.  I can't thank everyone enough, those who came and made it such a success and to those who donated prizes and their time to help.

On Friday 13th (!) we had Corey's MRI results.  His spine showed stability which is great.  Obviously we still have to watch out for any signs and symptoms of spinal cord compression but radiologically there has been no change.  We are still waiting for results regarding his hips and knees despite my weekly phone calls to the consultant's secretary.





















After this good news we boarded a plane and headed for some proper sunshine in Menorca.  We all had a fabulous time, swimming every day and visiting the beach.  Just generally chilling out and relaxing and enjoying time together as a family, in the sunshine!





As you may recall we have recently moved house and haven't got round to decorating anything yet.  On our arrival back home, from holiday my amazing friends had a massive surprise in store as they had redecorated Joshua's bedroom and turned it from the original purple and pink girls room into a proper boys dinosaur room!Our very own DIY SOS and 7 day makeover team!


Corey wasn't excluded from the makeover either and his room had some extra decorations in it but our plan is to redecorate it properly over the summer.














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