Sunday, April 26, 2015

28 days to go

MPS causes a build up of GAGS (glycosaminoglycans - long chains of complex sugar molecules) all over the body. One place these are stored, instead of being broken down are in joints. 
You can see that Corey's fingers cannot lie flat, they are 'clawed', a classic feature of MPS diseases.
He suffers from intermittent pain in his fingers and hands and it hurts if he falls onto them.
At the moment this hasn't hindered his motor skills too much although he can't do up buttons or zips but he's pretty good for short bursts on a climbing wall! 
Please donate at www.justgiving.com/mpsabseil

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